Expierance the Differance

I have for the past week been trying out a different dialysis. Click HERE to see the machine. This is a home dialysis machine. If I choose to move forward I could be trained to operate this guy and have it at my home. I would then dialyzes 6 days a week at home for a shorter period of time (around 2 hours) rather than 3 times a week for 4 hours. I would also be able to do on my schedule. So if all goes well in a couple of weeks I will be training on care and feeding of this machine and then be doing dialysis at home.



They have me doing a little bit of my own connection now. It is kinda' freaky hooking your self up and watching your own blood flowing into the machine. Even freakier (is that even a word) is the manipulation of syringes full of my own blood. I am sure that with time I will get used to it but I am not quite there yet.



News on the transplant front:

I have an appointment for a cardiac consult in a couple of weeks. I guess they need to consult before they cath me.



I called Madison and after several conversation I am meeting with them in late September. This is the pre-listing meeting. They say the wait is shorter there I guess we'll see.



My donors are going through the paces to get tested. They have completed the paper work and are awaiting further instruction.



Will Stuff

We think Will may be some food allergies, We over the Independence Day holiday he turned red and blotchy. So we are getting him tested for allergies. Not sure if this is the good news or not but they don't do the scratch test any more. They do blood tests. So on Monday Amy to Will to the clinic to get a blood draw. After 2 pokes the draw was unsuccessful. He had 2 bandages and was quite unhappy after the experience. Thursday I took him to a different clinic across from Children's Hospital. As soon as they put the tourniquet on he know hat was next Afer olne unsuccessful poke theu were finally able to get the blood drawn. Ill let you know the results.

I am not on the list.......yet

Well the committee met on Monday. I learned on Wednesday that I am not on the list yet. The decision o the committee was that I will need to undergo a cardiac catheterisation prior to getting on the list. Whilst my last stress test was good and showed nothing of interest the committee feels that I need this procedure "just to be sure" that there are no hidden heartr goblins. I asked if going for a hard mountain bike ride wouldn't give the same results. Nope they still want to see the pics.

Soooo in the next week or two I will be going in for a look see of the inside of my heart. I want to see ifin' they will give me the pics to post!